Sunday, June 15, 2014

Fill My World With Love

Welcome to our 3rd Annual Salute to Rett Dads! Each day this week leading up to Father's Day, we will share a blog written by a father of a girl suffering from Rett Syndrome. Later in the week we will share a video slideshow of over 100 dads with their beautiful girls.

Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" .... times one million! To all the Rett Dads - thank you for your special role in raising these very special girls.

Other blogs this week:
Rockin' Out in Rettville - by Eli Callaway
Inspired by Catherine - by Gordon Christie
Superpowers - by Jeremy Springhart
My Princess, My Everyday Light - by Juan Diego Perez
Being Avery's Dad - by Bryan Beeson
She Melts My Heart With a Single Smile - by Phil Covington
Together with Evie - by Frank Morris

Written by: Jon Seeman

I met Kelly, Brooklyn and Boston almost 3 years ago. I was 38 years old and had no idea they would change my life. I found the woman of my dreams and two very precious children. I have the honor and privilege of caring for and loving Brookie and Boston every day. I may not be their biological father but I love the two of them as they are my own.

For those of you who do not know, Kelly's daughter Brooklyn (my Little angel) has Rett Syndrome, and her son Boston (my little bubbers) has a duel diagnosis of Down Syndrome and Autism. I have received compliments from many people saying  "what a good person I am for choosing a life with two special needs children." I realize I am being complimented and while it is nice to hear, I feel they are unwarranted.  In my heart, I don't feel like I chose this life for myself, I think it chose me. I think it was God's will that Kelly and I met and fell in love.

I am thankful to God that I have been blessed with two amazing children to love.

I am thankful that I get to play outside with them.

I am thankful to be able to tuck them in at night.

I am thankful to snuggle with them in the recliner.

I am thankful to be able to watch Disney channel with Brookie.

I am thankful to have Boston sit In my lap, cuddle and watch the Wiggles on the iPad.

I am thankful to see their amazing smiles when they are happy.

I am thankful to be around to console and love on them when they are hurting or sad.

Many of you know that caring for special needs children is not always easy but I would not trade them for the world (of course we will be throwing one heck of a party when we cure Rett Syndrome!). Boston and Brooklyn are my two little angels and I could not imagine my life without them in it. I love them so so so very much. I might not have helped bring them into this world but they fill MY world with love! 


  1. Oh my goodness Jon! You are incredible and I am so happy you and Kelly connected and Brookie and B-Man have you in their lives! :). Great post!

  2. I so love this, Jon you are so right God chose you for this family. You were the answer to our prayers. Kelly and the kids deserved someone who loved as they do with their whole heart and in you the perfect match was found.

    You are one amazing man but also one lucky one as that lady rocks xxx

  3. You are a good good man, Jon!

  4. It is so very obvious to me that God brought you four together. Praise God!!

  5. This was so amazing Jon! Happy Father's Day!! So thankful you two wonderful people found each other.