- One of the most common reasons is hand mouthing. Rett brings on repetitive hand movements, and for many of our girls that means mouthing hands continuously. This is not only distracting, but exposes our girls to many germs - especially while in school - and can also cause skin breakdown from the constant wetness.
- Arm braces may also be worn for safety when our Rett Girls engage in self injurious or involuntary behavior.
- They may also be used in therapy to provide support or stability while doing therapy.
- Lastly they may also be used in place of an IV board when our Rett Girls are in the hospital. In fact, the feedback we have heard from parents about using their own arm braces in place of IV boards has been great, they seem to offer our girls just a bit more comfort and a little more stability to keeping that arm straight with an IV in place.
We have heard from many Rett parents about arm braces and most experiences are positive. Many tell us that they never wanted to limit their Rett Girls' movements, but once they did their girls were able to concentrate on other things and were not as distracted by their hand movements. That being said ALL our girls are different so try it out if your Rett Girl is experiencing any of the above and see if it helps out.
armbraces.com: Offers home made arm braces (among other things) that are custom made. You give your Rett girls arm measurements and you choose the fabric. You can even send in your own fabric to make them truly unique and custom.
The Bamboo Brace: Uses 5 flexible and interchangeable "stays" that you can insert into the neoprene arm wrap so you can adjust to varying amounts of plasticity or instability. These arm braces were developed by physical therapists and are perfect for therapy and weight bearing exercises.
Pedi Wrap: Are arm braces that hold their position a little better and don't slide as much as the armbraces.com ones, however these are not custom, they come in set sizes and patterns. You can call to ask for a specific type of pattern or color but you are limited to what they may have in stock.
Benik Hinged Elbow Support: Is a bit more pricey but may be picked up by your insurance company with the proper paperwork. This arm brace offers a custom fit and is adjustable so you can control your Rett Girl's range of motion.
Sleepy Cow Creations: Has an arm brace much like the the Pedi Wrap only they are able to customize the size and the fabric. They also have a very affordable price and for an additional charge they can make your girl a matching bib!