Monday, January 3, 2011


Good Day RettGirls!

While building we wanted it to to be The place to go for those of us living with Rett Syndrome.

Our first desire was to make it a place that families and caregivers could go to find anything they may need to make this journey easier. The lingering thought in the forefront of all of our minds was that we did not want anyone to ever have to go through what we did when our girls were diagnosed.

We searched the internet and books and never found anything in the same place or anything that helped us live with Rett Syndrome. You can live with it and we are determinded to make RettGirl the place to go to find anything you may need.

We have complied a list of helpful websites in many areas and we want to make sure that everyone knows what is out there to help you and your girls.

In our Resources section we have a useful links to other Rett Syndrome Organizations:

Rett Syndrome Research Trust

International Rett Syndrome Foundation

Israel Rett Syndrome Center


Rett Syndrome Association (UK)

Rett Syndrome Community Foundation (North Carolina)

Rett Syndrome Research Assistance (Ukraine)

We also have links to many General Disability Resources that no one seems to have handy. There are so many services provided by all these organizations. We encourage you to check them out!

Supplemental Security Income

National Dissemination Center for Children with Disabilities

Worldwise Education and Awareness for Movement Disorders

The Arc of the United States

Special Needs Financial Advocates

Special Needs Advocate

My Child Without Limits

But no it doesn't end there! We also have links to Product Resources! Adaptive equiptment,supplies,therapy tools,toys,clothes and more!

In our new School Section we have links to several Free online games for our girls as well as their siblings. -Dr. Seuss games, books, etc. worksheets for all academic areas, daily and monthly themed events that parents can download to use at home. -educational resources for autism. -educational resources, parent friendly. – math website. – interesting fun and educational. – online games. – exploring the world. – educating kids about the solar system. -free online games, puzzles. – based upon the Magazine but Kid Friendly. – a fun place to learn! games that uses earobics. – coloring page website. – educational games.

Just click on our Media section and it will take you to Websites for:




The Gluten Free Mall

Communication Tools and so much more!!

This is just part of the many resources we have for our families at RettGirl. As always, we hope you will find whatever it is you are looking for at and if not, let us know and we will do our best to find it for you!

Terri V~For RettGirl

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