We hope everyone had a wonderful Holiday week.
This week we wanted to make sure that everyone know about our Resources page at RettGirl.org and the abundance of information we have there for you! It has taken alot of time and effort to get this all in one spot and at your fingertips, and we plan on adding more soon. It is our mission to be the GO TO place for all things that affect our girls!
We have information on:
RESEARCH
Rett Syndrome Research Trust
Website: http://www.reverserett.org/
Blog: http://www.rettsyndrome.wordpress.com/
Newsletter: RTT Watch
Twitter: www.twitter.com/rsrt
OTHER RETT ORGANIZATIONS:
International Rett Syndrome Foundation
Israel Rett Syndrome Center
Mikyla-Cure
Rett Syndrome Association (UK)
Rett Syndrome Community Foundation (North Carolina)
Rett Syndrome Research Assistance (Ukraine)
Stitching Rett Syndroom (Netherlands)
PAPERS ON RETT SYNDROME FROM SPECIALISTS:
Multi-Modal Communication Strategies for
Children Who have Rett Syndrome
Linda J. Burkhart
Optimizing Nutrition for Girls Affected with Rett Syndrome
Sara-Jane White, Doctor of Naturopathic Medicine
ABOUT “GIRLS WITH RETT SYNDROME”
LETTER FROM RJ COOPER – Pioneer in Assistive Technology
www.rjcooper.com
Back to School Tips From Parents:
Back To School Strategies for
Children Who have Rett Syndrome
GirlPower2cure
How to Adapt with PVC
PVC Assistive Tech
Websites
We hope you find many things you need here. As always we welcome your input. We could not have built this list without you!
We are truly dedicated in helping new and existing families live with Rett Syndrome with the most information and support possible.
Terri V~ For RettGirl
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