Good Day RettGirls!
After hearing tremendous stories from many of you about your eye gaze devices, journeys and hardships in getting them for your girls we decided to put together a page at RettGirl.org as a resource to help you find out what is out there and how to get it! You can find this all on our new EYE GAZE PAGE!
[An "eye gaze" device is a type of computer screen that uses infared technology to "read" where the user's eyes are looking -- the user can then use their eyes to control the mouse pointer and access software that "speaks" the words the user looks at.]
Some of us here at RettGirl are on our own journeys to get devices for our girls. After seeing the complete and total control one of our own daughters had when testing a device, we knew this was something we had to put together for everyone. When you see a RettGirl answer questions immediately with her eyes then hear a voice give the answer it is amazing! There is such a sense of relief and a giant urge to dance around the room screaming, "I told you so!"
We all struggle with Speech and Language Therapists, caseworkers, insurance companies and schools over communication, apraxia and our girls' hidden abilities to communicate.
We hope to ease this fight for all of us. Very soon. Please read through what we have and use it to your advantage.
Included on our new EYE GAZE PAGE:
- Links to four eye gaze systems
- Two Medical Necessity Letter examples
- NEW! Join our EYE GAZE GROUP HUB to share information with other Rett Syndrome families seeking or using an eye gaze device.
TIP! When speaking with insurance companies, use the term “SPEECH GENERATING DEVICE.”
Enjoy and Good Luck!
Terri V~For RettGirl