Our Marvelous Media Category!

Good Day RettGirls!

This week at RettGirl.org we are featuring our Media tab under our Product Reviews.

There is so much to find here that can help you and your girls. Teachers and caregivers have all used our media category to teach themselves a little more about our girls and what works for them.

What can you find here? Let's take a look.

Media

Books-We have online books, Children's Books, Education in Rett Syndrome books, Nutrition, Care and more ...

Music-Personalized CDs. GirlPower2Cure CD; controllers, RettComposers, devices ...

COOL ALERT! It's a large-button controller to control songs on an iPod!

Software-Free software sites, Recommendations, Sites for Teachers and Speech Pathologists ...

Video-Websites, Devices, Video suggestions, Educational videos, ASL ...

Websites-Disability resources, Government offices, Product resources, App reviews, Software sites, Free Educational Programs for the classroom sites, and much much more ...

We are always learning and growing for you here at RettGirl.org. If you have suggestions or anything to add to what you find at RettGirl, we would love to add and share with all of our families living with Rett Syndrome.

We hope you find something here that can help!

And please feel free to share with your schools. My daughter's teacher has RettGirl.org bookmarked and uses ideas from here for her entire classroom!


Have a great week,

Terri V-for RettGirl

Pathways to Learning in Rett Syndrome

Happy Monday RettGirls!

Today we want to tell you about this wonderful book titled Pathways To Learning In Rett Syndrome by Jackie Lewis and Debbie Wilson. We have this incredible resource under Books, Communication and School Categories at RettGirl.org

I stumbled upon this book right before my own daughter started pre-school. I was in my local book store trying to find something, anything in the Health and Special Needs section that would help me explain Rett to the school as she was about to have her placement testing and I was scared to death that they wouldn't get it, that they wouldn't get her.

After an hour or more of pouring through the Autism, Sensory and Neurological disorder books and manuals I had found nothing. Only that one little paragraph in the back of the spectrum book that had made me pass out months before.

I went to the customer service counter and asked them to type in Rett Syndrome and only a handful of titles showed up. The clerk then remembered that she has ordered this book for another parent not too long before. She took a look at my girl and told me she would order the book and give me 72 hours to look through it and if I didn't want it I could return it to the store for a full refund.

This book didn't get returned. Within hours of receiving it I had page after page highlighted on how Rett Syndrome affected my own daughter. Before this book I had no idea how to explain Apraxia and how you have to wait for an answer. This book has so many things that we as parents see and know but don't necessarily know how to articulate in a way that an educator or therapist will understand. You will find it all in this book.

I wish someone had told me about this wonderful resource and that it wasn't something I had to search for and stumble upon on my own. This is exactly the reason RettGirl.org was formed. So all parents, caregivers, educators and doctors would be a click away from invaluable information to make life any easier on all of us affected. That is our our mission.


http://rettgirl.org/2010/08/pathways-to-learning-in-rett-syndrome/


Terri V- For RettGirl