Tuesday, June 12, 2012

"Be Happy No Matter How Large the Obstacle"

With Father's Day coming up, we asked Rett Dads to be our guest bloggers for the week. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" .... times one million! To all the Rett Dads - thank you for your special role in raising these very special girls. 

our other Daddy posts this week:
Pete Curry: No laughter. No fun. No thank you.


Blog #2: Bill Hileman, Brynn's dad.

My daughter Brynn was diagnosed with Rett Syndrome when she was 2. We soon found that although she was not physically able to do many things, she still understood and was just like other children her age.

One of our favorite things to do is to swing at the park. Even when there is no swing that she is able to use I will swing with her on my lap (we can go higher that way too). Brynn LOVES Mickey Mouse. I think I know every song and have seen every episode of the Mickey Mouse club house. Our other favorite thing to do is to go out to eat. Brynn gets so excited while we are waiting for our meals to come.

When we first found out that Brynn had Rett Syndrome it seemed like a daunting task. Of all of the possible diagnosis this one seemed to be the worst. As we continue to learn more and more about Rett Syndrome our future challenges seem a little less scary.

We know that there is hope for our daughters. I think that Brynn has taught me more than I could ever teach her. She has taught me how to smile through adversity, laugh when things get tough, and to be happy no matter how large the obstacle.

Bill Hileman

1 comment:

  1. How is it that these RS girls seem so much wiser than us? Even the toughest day melts away when I see my sweet girl's smile.