Diet/Nutrition

Good day RettGirls!

This week we are going to highlight our Diet/Nutrition category at RettGirl.org. We are hoping everyone will find something here that can help their RettGirl with those all important nutrition tips, recipes and products.

Recipes

For those of you who have contact with other families, you know that each girl's little tummy works differently, so we have separated our recipes into separate allergy/tolerance categories.

Quick/Easy- We have several 5-10 minute recipes than you can divide and freeze for heat-and eat-meals on the go or for school.

High Calorie-We are looking for high calorie recipes for those girls that eat by mouth. Easy to make and easy to serve that will help pack on those pounds!

Gluten Free-We have recipes and sites to help you learn how to get that wheat and yeast out of your girl's diet. Many girls, like my own are allergic to wheat and yeast and it took me forever to learn the signs and get her tested. We are always looking for more!

Dairy Free-Learn how to replace those milk products with nutritious alternatives like rice, almond and coconut milk without breaking the bank!

GFCF-Wheat and milk allergies together affect a ton of our girls. Find recipes here or submit yours today!

Supplements

From liquid vitamins to tummy relief medicine. We have many products here that you really are not told about until you hear it from another Rett parent.

Products

Calorie, fiber and protein boosters, grinders, wheat free pastas and more!

Tips

Calorie and fiber tips. Benefits from juices and oils!

Resources

Papers on nutrition, websites and more!

We are always looking for info from you,our experts to help RettGirl grow. Please submit your ideas,tips and recipes today!

Happy tummys! And, please, proceed with caution and make any changes slowly and with medical consent where necessary.

http://rettgirl.org/dietnutrition/

Terri V~For RettGirl

My Pool Pal Swim-Sters

Happy Summer RettGirls!

This week at RettGirl.org the feature is My Pool Pal Swim-Sters - Special Needs swim diapers. You can find these swim diapers and more by visiting our Therapies category.

In the past few weeks I have taken my daughter swimming several times. She thinks she's a little fishy and it's hard to keep her out of a bathtub or pool if she spots one.

I have been struggling as of late to get the largest size, store-bought swim diaper on her. I had a friend who just happens to be a Rett mom with a little fishie of her own direct me to My Pool Pals and their line of Swim-Sters Diapers.


When we got home I asked my daughters OT where she thought I could find a larger, worth the price swim diaper. Her first response was,"There is this great special needs company called My Pool Pal."

I was pleased to find that My Pool Pal offers a whole line of disability swim products from infant to adult. That includes sized 6-8 - XXXL


The swim diapers come in disposable and reusable. The diposables can be washed and reused until soiled. The reusables are just that. A rep told me today that the children usually outgrow them before they outuse them.

They are also endorsed by Easter Seals and The World Waterpark Association!

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From the company website:

Swim-sters special needs swim diapers are perfect for anyone who requires a diaper while swimming. Plus, since they are designed to be worn discreetly under a swimsuit while helping prevent harmful bacteria from entering the water, they are perfect for individuals with bowel incontinence. All of our special needs flotation swimsuits and special needs swim diapers are available in a wide variety of sizes, and can also be custom made for larger sizes and other specific needs.

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Good luck and Happy Swimming to you all!


To order from My Pool Pal direct by phone call: 1-800-453-9399
or
order online through our link:
http://rettgirl.org/2011/06/swim-sters-swim-diapers/


Terri V~ For RettGirl

A4CWSN

Hello RettGirls!

I actually had to take a few days to calm down before I was able to write a blog about this week's feature, A4CWSN! An incredible website you can find listed at RettGirl.org in our Product Reviews for Websites and in our iPAD section!

For anyone who does not have Facebook or vanished off the planet in the last week A4CWSN stands for Apps for Children With Special Needs.

Seems like a simple enough thing right? At first look, it's a website that reviews apps. Oh but no no no -- it is so much more than that!

Rewind....When we first got our iPAD from a generous donor who had read my personal blog, I was so jazzed I ran out and bought every app I had heard of. Yep, that's right. Spent all of $200.00 on apps I couldn't customize the way I needed them or because I heard a blip somewhere that they were cool. Turns out my daughter had only slight interest in a select few. Those select few happened to be between free and $1.99.

She had no interest and no ability to touch the iPAD. I know, Duh Terri. I thought it was going to be magic or something. I think like all RettMoms, I am one of those that buys everything I think might help or spark her interest. I have gone through a fortune doing this and I don't have a fortune.

Gary James and his team..mostly him I'm pretty sure, have developed a site where they review each featured app with a video demonstration. So, you don't just have a screenshot and hope for the best before you click out those big bucks. You actually get to see them in action!

This past weekend Gary hosted a 3-day party...which still seems to be ongoing..where he gave away thousands...yes thousands of apps to special needs parents. Some by first-come, first-serve. Some by find the real code, by draw and by a "tell me your story" approach. I, myself, won a $200.00 communication app for my daughter. I cant wait to really get in there and set it up. I am so excited.

Not only did Mr. James have this party and give away apps. He also gave away iPads, iPods and more. He spoke to each person who won by post or email and did it with charm, wit, graciousness and so much more from a parent who knows.

I invite you all to check out A4CWSN. There really is a ton of stuff to learn there. Visit his site, support his efforts. He is providing an invaluable service to children like ours all over the world!

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From A4CWSN:

Apps for Children with Special Needs (a4cwsn) is committed to helping the families and carers of children with special needs and the wider community of educators and therapists who support them, by producing videos that demonstrate how products designed to educate children and build their life skills really work from a user perspective. Our aim is that these videos, along with relevant information and advice from an independent source you can trust, provides valuable insight into whether a product is suitable for its intended purpose or not, enabling sensible buying decisions to be made. We hope this site and its content provides a valuable resource to the community that serves our precious children with special needs. Please let us know how we can improve the service we offer, or indeed how you can help us to do a better job, by emailing Info@a4cwsn.com

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Have a wonderful week everyone!

Terri V~For RettGirl